Comments for Adventures of a Funky Heart!

Comment on 24 hours at Johns Hopkins by Amy B.

Amy B. — Mon, 29 Nov 2010 02:28:04 +0000

Excellent post. Great reminder of how far we have come… thanks for kicking of the anniversary in style.

I also had fun trying the surgery and listening to the comments that went along with it. Thanks for the great links.

Comment on 24 hours at Johns Hopkins by Shannon Carter

Shannon Carter — Sun, 28 Nov 2010 21:43:04 +0000

Excellent account, Steve! It’s amazing to see/read about how all of this got started. Miraculous….

Reading this makes me want to go rent “Something the Lord Made” again. I think I may do that in honor of the big anniversary. Great, GREAT post!

Comment on Present at the Creation by 24 hours at Johns Hopkins « Adventures of a Funky Heart!

24 hours at Johns Hopkins « Adventures of a Funky Heart! — Sun, 28 Nov 2010 20:09:05 +0000

[...] is moved to the Recovery Room, where Dr. Henry Bahnson is responsible for her care. As one might expect, Blalock and Taussig look in on her often. [...]

Comment on A Cure for Heart Defects! by Amy B.

Amy B. — Fri, 26 Nov 2010 17:46:27 +0000

Steve-

Thank you, as always, for your incredible insight and energy. I will throw in my favorite Margaret Mead quote:

Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.

March on… together, we can make a difference.

Comment on A Cure for Heart Defects! by Shannon Carter

Shannon Carter — Fri, 26 Nov 2010 14:40:35 +0000

Let’s do it!!

We’re working on it….www.hopeforbravehearts.org.

Comment on A Cure for Heart Defects! by Laurel Nelson

Laurel Nelson — Fri, 26 Nov 2010 14:14:40 +0000

Hear hear! That is powerful and ambitious. May we actually live to see this one come to pass!

Comment on What you need in a hospital by Jolo

Jolo — Fri, 26 Nov 2010 08:49:56 +0000

indeed! “The true genius shudders at incompleteness – and usually prefers silence to saying something which is not everything it should be.” Edgar Allan Poe

Comment on Celebrate Red and Blue Day by Betsy

Betsy — Thu, 25 Nov 2010 02:48:20 +0000

I just found the movie, ‘Something the Lord made’ on Netflix. It’s about the very history your post is about. I never knew about red & blue day though. Thanks for sharing! As a parent of a CHD child you can be sure I will be wearing my red & blue!

Comment on A disturbing report by Leasha

Leasha — Wed, 24 Nov 2010 23:38:28 +0000

Hi, I’m 30 (in two weeks) and I’m a fontan survivor from the UK. I’ve just read this report and didn’t realise how serious the op was (mine was done in 1983).
My survival comes from NOT reading these kind of things, they are negative and should be ignored unless you’re in the medical profession!

I live my life as any other person would, I drink, I’m a light smoker and I live my life believe me!!!

I only know of 2 out of 8 defects that I have, those being DILV and PS (no idea what the others are). I take warfarin and have yearly check ups. My naïveté has brought me this far and will take me further (maybe I’ll be the longest fontan survivor one day with this attitude).

All I’m trying to say is don’t read to much into it!! I was supposed to die…and I didn’t! I read recently that a child doesn’t know statistics and that is probably why they fight and combat diseases and cancers better than adults. If I knew or my parents let on about stats I may not have made it all them years ago…positivity is the way forward!

I can’t fault the work the medical professionals do into improving this procedure and I would recommend it if needed, just don’t read to much into it on the Internet because this alone is enough to make your heart pump faster.

My advice is to focus on what survivors have to say, not what the stats report

Comment on Celebrate Red and Blue Day by Kim@insuringwaco.com

Kim@insuringwaco.com — Wed, 24 Nov 2010 19:40:42 +0000

Just watched this movie on this exact event. thank God for those couargeous people who believed that the heart could be operated on when everyone else believe it was not an operatable organ. My son is a heart baby, he is a wonderful seven year boy.