“Who am I? You sure you want to know? The story of my life is not for the faint of heart.” — Peter Parker, Spider-Man
Here’s what I need you to do:
Call or e-mail everyone you know who is involved in the Congenital Heart Defect community. Heart Moms, Heart Dads, older Cardiac Kids…and ask them to read Adventures of a Funky Heart!, beginning tomorrow. By hook or by crook, get them here. If your friend doesn’t have computer access, offer to print out the page and give it to them to read.
Because tomorrow, Heather Magee is going to be my “guest host”, and she’s going to tell you about sharing her story with the viewers of How to Look Good Naked. And for the next few days, I’m going to help you prepare to share YOUR story… and help every one of us with a Congenital Heart Defect.
Because a Congenital Heart Defect is an “invisible disability.” In, fact, if you type the letters CHD into a search engine, most of the results will involved that other CHD – Coronary Heart Disease. The average guy on the street will never know we have one… and neither will our lawmakers. We’re an unseen group. If the population of the United States is roughly three hundred million, (305,787,407 estimated as of this writing) then there should be two and a half million people with a heart defect living in the US right now. That’s a pretty large group of people! But since we’re “invisible”, we’re often overlooked.
If we want better funding for research or insurance that is easier to obtain, we’ve got to get out there and let people know about life with a heart defect. Quell some rumors and disprove some misunderstandings. We aren’t just sitting around, waiting to die. We’re out living our lives, contributing to society, and all we want is a fair chance to keep on keepin’ on.
To get that chance, we’ve got to speak up. If you are interested in telling your story, I’ll be glad to help you tell it.
Heather’s story will be posted about 7:00 PM Eastern Standard Time Tuesday, December 2, 2008. Be here!
“I do what I do to defeat the evil that is inside of me.” — Lamont Cranston, The Shadow… and often borrowed by Steve, The Funky Heart