“My mom has a funky heart!”

Laurie over at A Chronic Dose has an excellent post about having a baby when you are chronically ill. Laurie doesn’t mention Congenital Heart Defects specifically, but a lot of her information can help prospective parents make an informed decision.  It would pay for both partners to read this link, since raising a family requires so much teamwork… especially when one parent could become incapacitated at any time.

The good news is that a woman with a Congenital Heart Defect can have a child! Dr. Carole Warnes of the Mayo Clinic presented a paper and gave an interview concerning Adult CHD pregnancy. But you shouldn’t just throw caution to the wind. An expectant mother with a Heart Defect needs to be monitored by an Adult Congenital Heart Defect Cardiologist or a high risk OB/GYN, and possibly both. There are defects in which pregnancy is defiantly not recommended, and drugs or drug dosages may need to be altered. This is not a do-it-yourself project!

So… where can you find an Adult Congenital Heart Defect Cardiologist? There’s not one on every corner, I hate to say. If you’re an adult living with a Congenital Heart Defect, you really need to consider joining the Adult Congenital Heart Association (ACHA). Membership is free to Adult CHD Survivors, and one of the benefits of membership is access to the Clinic Directory. This directory lists Adult Congenital Care programs across the country; some of them have a high risk OB/GYN on staff, or they can recommend someone.


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One Response to ““My mom has a funky heart!””

  1. Gina Dyke Says:

    I know my family isn’t able to “check in” every day, but thank you so much for adding us to your subscriber list. Although our son is only 4, and has just completed his Fontan for Tricuspid Atresia, your posts give us so much hope for what he may encounter in the future. Not to mention that they give us hope for the future!!!!!

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