More resources!

Did you know that the Centers for Disease Control (CDC) publishes an online assessment of Flu activity in the United States, updated weekly? They do, click here to read it. It is usually a week behind… it takes a few days for all the information to come into to CDC Headquarters in Atlanta and be compiled. The CDC Flu Report features lots of numbers, charts, and graphs, so if you tend to be a bit geeky, this is for you. (If your are female, single, and a bit geeky, feel free to contact me…!)

Google also has a Flu website, and they claim that their information is current. Their thinking is that when people begin to feel bad, they will go to their computer and enter their symptoms into a search engine, trying to determine if they really are ill. Google FluTrends is programmed to detect words used to describe flu symptoms, and it will report them both on a chart and visually. TIP: When you switch to a state view, the chart will be blank. It takes a few seconds to load the information.

Google is full of wonderful information, if you just know where to look. Typing the words “Congenital, Heart” into Google Book Search brings you a list of books about the subject, and clicking one of the links usually provides you with images of the cover and pages! Because of Copyright issues, some of the books are “limited preview”, and some are not available at all. This tool is useful for seeing what books are available on a subject.

Google Scholar is a compilation of technical works about a subject. This is where you enter can enter more elaborate terms into the search box, like Bidirectional Glenn. There are plenty of papers to study here, and the word is STUDY – these are by doctors for other doctors, with lots of medical words to slog through!

Just remember that not everything you read on the Internet is true… and it may not apply to you! If you look up information of Congestive Heart Failure (CHF), for example, most of the literature states that the average CHF patient survives for five years after the initial diagnosis. That accounts for all patients… including the ones who may already be suffering a debilitating illness and the ones who say “Oh my goodness, my heart is failing!” and just roll over and let it happen. If you change your diet, exercise, and take care of yourself, you can live well beyond the 5 year “limit”. I’m in my 7th year of CHF and doing very well!

Google Blogs will take you to a familiar website! It will also show you other blogs dealing with Congenital Heart Defects, and this may be the most useful tool that Google offers… the comfort of knowing that you aren’t alone!

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2 Responses to “More resources!”

  1. Kelly Says:

    Thanks so much for your words..I am the mom of a beautiful year-old son who had coarctation repair in June. He’s doing well but I’ve struggled so much. We had an early MD who pronounced him cured and it was quite a blow to realize he’s fixed but certainly not cured. Your blog has given me courage for the journey and I’m so grateful.

  2. Kelly Says:

    Thanks for the quick reply and the further words of encouragement. We live in Palm Beach County Florida and our son’t surgery was performed by Dr. Redmond Burke at Miami Children’s. I am still trying to understand why they promote, “all is well and fixed,” when they know via scientific research that it is just not true. Is it ego, denial or what? Some of the nurses we had really questioned the surgeon’s knowledge of what parents endure long term. I was told he was “healed” by two regular pediatric cardiologists. Just such a blow when we’ve discovered otherwise. Where are you located? Keep on blogging, you’ve got lots to say!

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