Thank you

I want so bad to go home and live a ‘normal’ life; a life of ‘normal’ baby ups and downs. Today our hearts broke for our son. He will have to have open heart surgery number two at just six weeks of life. That is something that no one deserves,” Lucas’ parents write on their blog. They thought that things were going well; as far as they knew they were ’rounding third and heading for home. Lucas had come through his operation, made it through Recovery and had just moved into a step-down unit. And then the bottom fell out: More than likely, they are heading back to the Operating Room.

I was chatting with some other Congenital Heart Defect (CHD) Survivors while I was in Colorado, and the subject of our childhoods came up. Even though we came from different backgrounds and our lives have taken us in different directions, we had one thing in common: strong parents. They stood up for us when we couldn’t stand up for ourselves. They sacrificed, so that we could have. They asked one more question, explored one more option, traveled one more mile, all for us.

Our parents dreams of the perfect family with the white picket fence and the dog were blown to bits in that moment when a doctor took them by the arm and said “We need to talk…” They had precious little time to prepare for the journey they would take, but they dug their heels in and stood like a rock when their world crashed down around them.  They have suffered right along with us. And some of them have found the strength to say goodbye.

I’ve been called a hero because I write this blog. I am not comfortable with that; I’m just a grown up country boy. Heart Mom and Heart Dad, if you want to see a real hero, go look in a mirror.

Until next time;

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2 Responses to “Thank you”

  1. Kelly Says:

    Well this one really got to me. Thanks Steve and thanks to your parents for all their courage. Thanks for the flu reminder too…media is just ignoring it…live virus vaccine will be a real issue for all heart heroes. Praying there’ll be another option.

  2. SONNET Says:

    Really every hero has a good support from his family.
    Thanks for parents of all my patient.
    They suffer even more in our developing country.
    They sustain till the end.

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