Gracie Gledhill had to fight from the moment she got here. Born with Hypoplastic Left Heart Syndrome (HLHS), Gracie had the first stage of the Norwood Procedure at four days old. She never received the second operation, the Bi-Directional Glenn Shunt, because her doctors felt that she was too sick for the operation. Finding a transplantable heart became her only option. (For those who would like to know, all three surgeries to repair an HLHS heart are very well described in the HLHS link)
Gracie fought and scratched, tooth and nail, never giving up. And finally it looked like she was about to win: the call came, a donor heart had been found, and Gracie was the lucky recipient.
Not so lucky… the new heart was itself damaged, the left ventricle barely functional. Gracie fought, her doctors fought, people worldwide (including Funky Heart readers) prayed, but in the end, Gracie slipped away – not quite one year old.
Fellow Heart Warrior Paul Cardall had become friends with the Gledhill family and introduced his new instrumental Gracie’s Theme at her funeral. Paul has honored Gracie again, by assembling a short video of her life with Gracie’s Theme as the background music.
Tags: Bi-Directional Glenn Shunt, CHD, Congenital Heart Defect, Congenital Heart Disease, Gracie, Gracie Gredhill, Gracie's Theme, Heart Transplant, HLHS, Hypoplastic Left Heart Syndrome, Music, Norwood Procedure, Paul Cardall