It’s starting to happen, folks!
An article in the Wall Street Journal last month noted that a lot of advances in pediatric medicine came about because adult treatments had been adapted for use in children. “We adopt things known to work in adult patients in pediatrics because we’re sort of desperate,” the article quotes a Pediatric Cardiologist. That’s pretty depressing – the research and the technology doesn’t exist yet, so new strategies have to be developed “on the fly.” Dr. Jack Lewin, the Chief Executive Officer of the American College of Cardiology (ACC), wrote a few days ago about the lack of Congenital Heart Defect knowledge/experience in some countries. The only realistic chance those children have is to travel to another country for Congenital Cardiac Care.
Dr. Lewin and the ACC are drawing a line in the sand with the new IMPACT (Improving Pediatric and Adult Congenital Treatment) registry. In the pilot stages right now, IMPACT begins for real in 2010 and will gather data on outcomes on CHD interventions done by Catherizations. It will also incorporate data from surgical procedures to give a better look at what works… and what doesn’t.
This looks like what we’ve all been waiting for… the beginnings of a nationwide Congenital Heart Defect registry that will improve Congenital Cardiac Care for everyone who has a Funky Heart!