Fighting On

Do not go gentle into that good night. Rage, rage against the dying of the light. – Dylan Thomas

“Florida Eliza” – or more correctly, Eliza Huff – now has a Memorial Page at the Broken Hearts of the Big Bend website and her obituary is online. I call her “Florida Eliza” because I know two young women named Eliza who have a Congenital Heart Defect (CHD). I had written an article for Funky Heart! about one just before I heard about the other, so I usually called Eliza Huff “Florida Eliza” to avoid any confusion.

Both young women have a heart defect, but in no way are they “victims.” One jogs every week and participates in a 10K road race, and before relocating to another area, served as a leader in her hometown’s CHD community. The other lost her battle but she didn’t go down easy; her heart arrested fifteen times but she battled back.

FIFTEEN TIMES. And they say that women are the weaker sex. That ain’t ‘actly true, is it?

And this is the reason why pooling our knowledge is so important. We need high level research forums for doctors to share data on the latest drugs, technology, and surgical techniques. And we also need  CHD Forums like the one sponsored by Broken Hearts of the Big Bend. So that those of us “on the front lines”, who live with a CHD or with a child who has a bad heart, can learn from each other.

So we can put an end to Heart Defects.

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