Road Warriors

NEWS: Zeb has to have surgery (the Ross Procedure) on Friday, February 26. His Mom, Rhonda, is a friend of mine and reader of the Funky Heart!, so I would appreciate it if my readers could help me keep an eye on Zeb!

I am packed for the trip to Atlanta – it can be a pain traveling to Atlanta for my Cardiology appointments, but it’s all a part of having an unusual Chronic Illness. You need expert medical care, and I feel that the team at Emory are some of the best.  As I’ve said before, the expert you need will not be found in a town of 5,000 people. These folks get to be experts by using their skills, and there just isn’t enough medical traffic in smaller cities. So you have to find a big hospital that sees lots of patients, and has a lot of experience to draw on. (There are exceptions to every rule, and two of the best known exceptions in Medicine are The Mayo Clinic in Rochester, Minnesota and Duke University Hospital in Durham, North Carolina.)

A recent study reports that there are only 72 Adult Congenital Heart Defect programs in the United States. So it looks like Heart Warriors will be Road Warriors for some time to come.

We do what we must do to defeat the evil that lives within us.

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4 Responses to “Road Warriors”

  1. Shannon Says:

    Good luck at your appointment!! Keep us posted!

    Big heart hugs and prayers,

  2. Megan Says:

    Well I am sure with the increase in number of kids living longer with repair surgeries there will be more of a demand for Adult Congenital Heart Defect specialists and therefore the number available when my son is older will be much different than now. He is currently a healthy happy 15 month old TGA survivor who had his arterial switch when he was 3 days old.

    Our thoughts are with you on your trip to the cardiologist!


  3. Karen Thurston Chavez Says:


    That is so NOT evil that lives within you. Your heart might not physically look like a “normal” heart, but it’s anything BUT evil. Warm, kind, generous, funny … yes. Funky? Oh, yeah. Evil? No way!

    Have a safe trip home!


    • Steve Says:

      The DEFECT is evil!

      And that’s a line from the movie “The Shadow” – it is in the movie trailer but is not actually spoken in the movie.

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