Here’s a blog post from a friend and a Heart Mom that you need to read:
Last night as I watched Mary Clare zoom by me in her mini airplane laughing so hard tears were streaming, I couldn’t help but think of what is ahead of us. The mother in me prayed a silent prayer and pleaded to God that this will somehow make it up to her. Maybe if she has the most fun summer, she’ll not hate me for what I know must be done to her. I’ve noticed Mel has also been thinking this way. He has promised to paint her toenails everyday while in the hospital this fall. He told her she could pick out 40 different colors, or however many days we are there, so they can be a different color everyday. He also promised her a trip to Disney World to see all of her beloved Princesses afterward.
How can I do this again? How can she do this again? Yet again. How am I going to be able to hand her over this time, not just for a heart cath, a simple procedure by comparison, but a surgery which rips her tiny body apart? How am I going to be able to watch her on a vent again? Lines, leads, monitors. All over again. Having her torn away from me at birth and sit by and watch all that she went through, then again to have the same thing happen merely 6 months later was horrific. She has to do it all over again, but this time she will ask. Why is this happening? Why can’t we go home? Why do I hurt? Why can’t you put a band-aid on it? These are the questions which haunt my dreams.
Wow. What a burden to carry around. How could anyone make the decision to send another person – especially a child – to heart surgery? And especially their child?
This Heart Mom obviously knows the answer to those questions: To save her life. To give her the best chance to have a reasonably normal existence. And to perhaps one day, tell her own children that her mom stood up for her when she was a child; tell how Grandma and Grandpa never gave up on her. Even when it looked like their lives were heading right over the edge of the cliff, they dug their nails in and they hung on.
Because that’s what Heart Parents do. They ask one more question. They explore one more option. They go one more mile.
And please keep this young family in your thoughts. Drop by their blog and wish them the best!