Surviving a Congenital Heart Defect

Karen Thurston Chavez of Broken Hearts of the Big Bend (a CHD Support Group in Tallahassee, Florida that I have had the honor of speaking to) asked me to contribute an original post to their new blog, Our Families, Our Hearts. Here’s a quick preview; click THIS LINK to be taken over to the BHBB blog to read the entire post:

To live with a heart defect, you have to first make peace with the fact that your defective heart will one day give out.

Doesn’t make sense? Read the rest, it will. And be sure to put Our Families, Our Hearts on your daily reading list; Broken Hearts of the Big Bend is a wonderful support network!

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2 Responses to “Surviving a Congenital Heart Defect”

  1. Karen Thurston Chavez Says:

    Thank you, Steve, for a wonderful contribution to the BHBB blog!

    We were just talking about you last night at our monthly dinner. Jennifer, whose son Will also has tricuspid atresia, is hoping when she goes to visit her parents in Columbia, S.C., that she’ll have a chance to visit with you. Between you and Ralph (he had Eisenmenger’s; double/lung-heart transplant in 2005), we heart parents know we have a lot to look forward to with our kids!


  2. Jenny Lincoln Says:

    Thank you so much for this! I saved it on my computer to show my daugher when she gets older. I always wonder, thinking back to my teenage years and remembering how I “knew everything”, how I am going to be sure that Aly knows what and why she needs to make the right decisions when it comes to her life and her health. Thanks again!

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