Posts Tagged ‘Palmetto Hearts’

This place is a zoo!

August 22, 2010

Yes it is! It was designed to be!

I was recently invited to be a part of a Congenital Heart Defect (CHD) Conference scheduled to be held at Riverbanks Zoo in Columbia, South Carolina! I haven’t said anything yet because it is still in the planning stages, but they have the date set: February 26, 2011!

I accepted – the zoo is only about 70 miles from my home. So no flights, and no Baggage Claim! I’m planning to stay away from any Baggage Claim area for a little while!

This will be fun, since I haven’t been to the Zoo in quite a while. Since I was there last (escorting a church youth group in the mid 1990’s) they have added a Botanical Garden and changed a lot of the exhibits. I do hate to see that the polar bears are gone. When I was in grade school we’d take a field trip to the zoo at least once a year, and the Polar Bear exhibit featured a large pool. I’m sure the bears appreciated it, since they are a little overdressed for South Carolina. They also had an underground cavern where you could watch the Polar Bears swim around through a huge plate-glass window in the side of the pool. The cavern always seemed to be closed; they had problems with the window leaking. But I looked at a map of the Zoo and the Polar Bears have been replaced by Grizzlies. I hope they have a pool and a window, for old times sake.

I took my oldest niece to the zoo when she was young, and like a good uncle I tried to convince her that I always thought my brother (her dad) was born in the Monkey exhibit. For some reason she didn’t believe me! Just to make sure, we studied the Monkeys for quite a while but didn’t see him. She said he was at work, but I think he was hiding in the shadows.

Being serious again, the Zoo will be fun, and I’ll get to hang out with a bunch of Cardiac Kids and their parents. We’ll have a blast together…. and if you are visiting Riverbanks Zoo that day, you’ll probably never know any of us are sick kids. We’ll look like a big group just out having fun, just like so many other groups that visit the Zoo. In most cases, a CHD is an invisible disability. You can’t tell we’re sick, and for the most part we adapt well. CHDers learn at an early age that we have to do things a little differently, take it just a step slower, and pace ourselves. We don’t want to be different, but as my father says, “You play the hand you were dealt.” This is the way it is, and we deal with it.

The conference is going to be sponsored by Palmetto Hearts, and you’ll see more details as they become available. If you are a heart family in South Carolina, plan to attend!

The Early Special at the Funky Heart Cafe

February 4, 2010

Let me remind you about two events that you want to be a part of if you live in the Palmetto State: Heart Parents Justin and Shannon are going to be hosting a Congenital Heart Defect (CHD) Awareness Breakfast this Saturday (February 6, 2010) at the Fatz Cafe on Broad River Road in Irmo, South Carolina. If you aren’t from around here, just head for the center of the state: Irmo is a suburb of our capital city, Columbia. The breakfast starts at 7:30 AM and continues until 10:30 AM, and for $7.00 you can get Pancakes (Butter and Syrup will be available, but remember, the arteries that get clogged will be yours!) Sausage, Fruit, and a beverage. And your $7.00 will go to the Medical University of South Carolina (MUSC) for CHD research! Their son Derrick is recovering from heart surgery (Less than 3 weeks ago!) but he says that he will make an appearance if his busy schedule allows. Hey, he’s lost some important “Kid Time” during his hospital stays, he’s still trying to catch up! Derrick is also a coin-carrying member of the Funky Heart team; ask him nicely and he might show it to you.

Once you have eaten so much that you need a hand getting to your car, drive over to The Inn at USC for the Palmetto Hearts CHD Conference! The Inn at USC is located at 1619 Pendelton Street, which is downtown. You could use a good walk after that big breakfast you just ate, but Fatz Cafe and The Inn are too far apart. Park up the street and walk the rest of the way.

The CHD Conference starts at 1:00 PM and lasts until 5:00. Featured will be several doctors from MUSC and Kim Russell, an adult CHD Survivor and author of the book In a Heartbeat. I’ve met Kim; she’s a classy woman and a strong advocate for CHD Survivors.

It’s going to be two great events – and I can’t be at either one of them, due to previous obligations. So it’s up to you to go in my place!

CHD Breakfast, Conference coming soon!

January 13, 2010

Two different events are going to be happening in Columbia, South Carolina soon – one to raise money for Congenital Heart Defect (CHD) research; and the other one an informational meeting for parents of children with a Congenital Heart Defect!

On February 6, 2010, A group of CHD parents and friends will serve breakfast at the Fatz Cafe on Broad River Road in Columbia, SC. Give them $7 and they’ll serve you pancakes, sausage, fruit, and a drink; and the money raised goes to Heart Defect research at the Medical University of South Carolina (MUSC). A good meal, a worthy cause, and a fair price – what else could you want?

Later that day Palmetto Hearts, a Congenital Heart Defect (CHD) support group based in South Carolina, will sponsor a CHD Parent Conference at The Inn at USC from 1:00 PM to 5:00 PM. One of the speakers will be Kim Russell, a fellow Adult Congenital Heart Association (ACHA) member from Atlanta. You’ll also get to meet and speak with several Congenital Cardiac experts from MUSC!

As much as I would like to, I’m not going to be able to be at either event – I have a previous family commitment. I know Funky Heart! readers enjoy “looking over my shoulder” when I liveblog a CHD event, but I can’t make it to this one, so you’ll have to come yourself!

Besides, do you want to read on you computer how much I am enjoying the pancakes? Probably not – you need to get down there yourself!!!