Posts Tagged ‘Quack’

Don’t trust me

June 6, 2010

Google Alerts is pretty cool. I can set up a search for a phrase, and whenever Google Alerts finds that phrase on a new (to them) webpage it will send me a link to it. I have several Google Alerts, and one of them searches for the phrase “Congenital Heart Disease”.

I got a link from Google Alerts over the weekend that almost caused me to jump through the roof. I’m not going to give you a link – no need for this idiot to exist, much less get a link from me – but I will quote from his webpage:

Some of our friends/patients have congenital heart disease, meaning genetically they have high cholesterol despite avid exercise, diet, and supplements. However, for those of us who may not have a specific history of heart disease, yet want to prevent it , we should consider what is best for us to do – regardless of our family history. It’s not all about fat and salt, contrary to public opinion and the words of associations such as the American Heart Association.

SAY WHAT? I’ve been living with a heart defect for 43 years and writing this blog for two years. No one has ever said to me (and I have never found in any research) that Congenital Heart Disease causes high cholesterol. But wait, it gets even better!

However, speaking of salt, most people are sodium deficient. There is absolutely nothing wrong (and it actually should be encouraged) with adding salt during your cooking.

WHOA! Anyone been following the news lately? Salt isn’t your friend – especially if you have Congestive Heart Failure (CHF).

You could shake your head and say that the writer just doesn’t know the facts. But that’s not it. A little further down the page, our writer provides the answer to all your health concerns:

You’d be amazed at how a diet and lifestyle change can get you off cholesterol-lowering and high blood pressure medications. Adding natural nutriceuticals/supplements can add even more help.  If you have never received (our services), give us a call at (XXX) XXX XXXX. We would love to help you get on the road to eating healthy for life.

It seems that he isn’t just incorrect, he’s intentionally misleading you in order to sell his product. Here’s the truth of the matter: If you try to “cure” or control a Congenital Heart Defect with a diet plan or nutritional supplements alone, you will die. It can’t be done – heart defects require constant attention and lifelong care. Even those of us with a “simple” Atrial Septal Defect are recommended to get a periodic Cardiology exam.

So here’s what I want you to do – don’t trust me. Assume that I am just some idiot with a keyboard and an Internet connection. Obviously you have a computer; Google your CHD and look up the research for yourself. Learn how to read it (not so hard these days, you can just Google what you don’t understand) and learn, learn, learn! Talk to your doctor at length, pick his/her brain for all the information you can find. Ask questions. Take the answers and use them to think of even more questions to ask.

Remember that the person who is going to be most affected by your health is… you. The doctor is looking out for you, but at the same time, he has other patients to worry about. You probably aren’t in the forefront of their mind. So learn all you can about your health, and get involved in your own care. Take a hands-on approach.

It’s your body, learn how it works and how to take care of it!

Feed medical information to the GATOR!

May 26, 2010


My cousin and her husband just stood up and cheered – both of them went to the University of Florida! This has nothing to do with UF… but in a way, it does.

Recent research done at the University of Florida shows that 86% of adult patients use the internet to find answers to health related questions. Yet, only 28 to 41 percent of those patients discuss the information they find with their doctors.

And as much as we’d like to think that people know enough to toss aside bad information, we all know people who think “It must be true; I read it on the internet!” As one of the researchers delicately put it,

“This discrepancy suggests that the majority of users accept web-based health recommendations in lieu of professional advice.”

Oh, boy. You know, you really don’t need that much to post something on the internet: A screen, keyboard, and internet connection will get the job done. You don’t need a degree or even a high school education.

So the good folks at Florida developed a five step system to evaluate the authenticity of health information you find on the internet. Naturally, they gave their system a memorable name – GATOR. (What did you expect? The University of Florida developed the first Sports Drink… and named it Gatorade!)

GATOR stands for Genuine, Accurate, Trustworthy, Origin and Readability – the five qualities you should look for when searching for medical information online.

Genuine: Is it a legitimate health website? For example, see THIS ARTICLE about Heart Defects and a common antidepressant. But also look at the URL and the owners of this website: are they trying to give medical information, or sell you their legal services?

Accurate: How correct is the information? This one can be a little harder to answer, as you need to know at least a little something about the information you are looking for. Chances are you do – so does any new information you learn seem logical and reasonable?

Trustworthy: This is very closely related to Accuracy, as accuracy usually builds trust. Does the information seem correct? Is the information linked, and do those links lead to legitimate sources that back up the information? Will another source give you the same information?

Origin: Where did the information come from? Google the author and see what you learn. Does he/she seem to know what they are talking about? If the website is formatted as questions and answers, look for questions that aren’t answered. It doesn’t matter how much you know, sooner or later someone’s going to hit you with a strange question. How you react to it is very telling. Obviously, if the majority of questions are answered with the phrase “I’ll get back to you on that!” then maybe the writer doesn’t know that much about the subject after all! Questions can be badly worded; does the writer ask for a clarification or attempt to interpret what the questioner wants to know? Or does he/she just dismiss them out of hand?

Readability: Can you understand it? Medical information that you can’t understand has no use. A link may take you to the original research (which will more than likely be written in “Doctor Talk) but can the writer rephrase it so that you can understand it? And when he/she does, is the information still accurate?

After going over the GATOR plan I think Adventures of a Funky Heart! stands up pretty well. I write about my life with a Congenital Heart Defect; I do my best to be accurate in what I say (I have links to the research that I post, you can read it and draw your own conclusions!) and I tell you many times to get a good doctor, and don’t do anything based on my advice without checking with your own doctor first. And I try to write in everyday language.

I think I would survive a GATOR Attack!